It has been nearly four years since doctors told one East Texas mother that her baby likely wouldn’t survive birth. Aralyn Faith Walden was born with a rare chromosomal disorder so she is missing three parts of her brain. Doctors said Aralyn may be blind, unable to walk or talk, and would never eat normally. There is no cure because so little is known about the disorder, but that didn’t stop Aralyn’s parents from giving her every chance at life.
“I just decided that I have faith, and I know god's with me, and I know, no matter how long I have her, I'm going to love her, and know she had a purpose,”her mother told us in a 2011 interview.
Now, in 2014, Aralyn is doing many things her mother was told she never would.
They said she wouldn’t talk, but now, she’s learning to sign. They said she’d never walk, but now, she’s getting around. Aralyn is almost four years old now.
“I just did not expect to have her this long. I just never dreamt that she would still be here,” Whitney Rowe, her mother, said in a current interview.
Aralyn’s mother has made sure her daughter has been given every opportunity to progress.
“We still do her medications regularly. We do therapies. We still do everything to help her advance,” she explained.
Medicine distribution and feedings happen several times a day through a tube and Aralyn sleeps in a special bed now. Doctors visits once made three time a week, are now limited to a few per year.
“We just chose to slow it down some and just spend time with her. She’s here until she’s not , I mean, and you just can’t predict it and going to the doctor isn’t going to change her life,” she said.
Doctors still don’t know how long Aralyn has.
“We’re told that neurologically her brain will just ware out. She will get too big for her brain to support her,” her mother explained.
But until then, Rowe is grateful for moments she was told she would never get.
“When she signed mama for the first time,” she said that was one of those moments.
And through all of it, her mother believes in Aralyn’s purpose.
“So far in her life it has been bringing people closer to God. She has really opened avenues for us to reach out to people to share our faith,” she said.
Aralyn is legally blind, but can still make out shapes and follow movement. The family is hoping to buy her an electronic wheel chair someday soon so she has even more mobility.
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